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10 Months Post-Op

Posted on
Sifan 7/10/2015

Sifan 7/10/2015

I’m not sure what to say, accept that I feel I need to post something.  Today marks 10 months since my SRS and birth into the physical reality of who I am.  Yesterday however, was the 3 month anniversary of when my beloved Lisa passed away.  This post will primarily cover transition.

The entirety of these past three months have been spent in grief, morning and loss.  People say I’m doing better, but it feels even worse than at first.  Nothing in my entire life has been this hard.  This is one of the reasons I could not post until now.  Not sure I’m ready to post now either but I feel I should.

I think I will be creating separate posts to cover the main things I’m going through and experiencing.  Those include the continuing transition (or perhaps it’s post transition now), the grief and loss of my spouse and what I’m going through and what is helping and the many ways that Lisa is showing up and making herself felt.  This last one is quite amazing.  Lisa is being felt by many and I have heard from a lot of people.  This has been an immense relief and comfort to me.

It does not relieve the grief and pain of loss.  After all these years of cuddling every night, all night long – my body experiences this loss so terribly.  But my spirit knows Lisa is with me and I experience her constantly.  These two things continue along at the same time – loss/grief and comfort.

Of course Lisa’s passing has completely eclipsed my transition.  I am very grateful that during this period of memorials, life celebrations and lots of public exposure that no one has ‘clocked’ me, no ‘he’ nor ‘him’ or sideways glances or inappropriate comments or remarks.  Actually I haven’t had anything like that for more than 1/2 a year now.  I’m not sure if that is because of looking more like a woman, acting more like a woman or because of my confidence in being who I am.  I think it’s all in the latter – confidence.  I’m not even thinking about whether I look like a woman or will I be ‘passing’ ok today, etc.   Thanks to my dearest Lisa, I have a confidence now that carries across.

As far as post op recovery is concerned:  wow, they are right – looking back, 6 months was the magical time!  As I stated in an earlier post, it almost happened overnight, the night before my 6 month anniversary.  I no longer used the seat cushion, the remaining pain went away, dilation was much easier, and on and on.

Since then, I have even ridden a bicycle!  Now that was something that the thought of before would send very unpleasant shivers up and down me.

I had a granulation between my labia on my right side that used to bleed now and then back in the months after I got home.  I was very concerned and was going to have my doctor here remove it.  The advice from Chonburi was to just leave it alone.  But I wondered what would become of it:  would it remain as a protrusion?  Would it fall off?  Would it just go back in?  Well now I have the answer – it goes back in.  It’s gone and everything looks good there.

However, my doctor noticed something else – it looked like a ‘Y’ shaped frenulum split my clitoris in half!  Sent off a picture to Chonburi and they said ‘oh oh – that needs a revision’.  Ouch.  The clitoris has ‘legs’ that come down inside the inner labia on a woman.  Apparently those legs are along the inner sides of the inner labia instead of underneath.  These are sensate, but not to the point of pain or it being a problem.  My doctor here said that unless they were effecting me, to not worry about it at all.  She also said to look at it this way:  I have ‘extra’ sensate areas – be glad !!  So, I have a normal clitoris, clitoral hood, frenulum etc., then directly below the frenulum I have these two longish bumps on each side between the upper inner labia that are also as sensate as the clitoris.  I’m happy with that!

For dilation, I’m now down to once every 3 days.  I am on the largest dilator, have been since before the 6 month mark.  I don’t have any problems, no pain and it’s been easy and fast to get to depth.  I will wait for another 2 months (my 1 year anniversary) before I cut down to once a week as recommended for that time and then for the rest of my life.  Trying to figure out what day I’ll do my dilations on when I get to once a week – hummm – Mondays? – nay, those are bad enough ….

I have finally stopped shaving the upper 1/2 of my face!  The electrolysis has progressed far enough along that she now cleans up anything from about midway from my chin to my lower lip and up, then has started on my jaw line and chin and below.  There is nothing to shave above that!  At last – this is soooo good.  However, hair is still growing on my chest and stomach and that is starting to really bother me.  It has slowed down and others have said that it will eventually stop given about 2 years or more of HRT.  But I’m starting to think I might have her do electrolysis there next if this continues.

I’m also having electrolysis on my eye brows and finding that very very helpful.  She applies a topical to numb the area – it’s still a bit more painful than other places but it’s a huge difference in how I look and I don’t have to pluck anymore.  What a relief.

One of the concerns I had recently was how to shave my back.  Lisa used to do that for me – in the hard places to reach, but now ….  Turns out at my doctor’s office they now have waxing and massage.  So I signed up for a waxing for my back, my ears and my nose.  Yes, nose!!  I was pleasantly surprised!  They use a topical to numb the inside of the nose and it really (for me) was not painful at all.  So this will become part of a tri-monthly routine for me now.

My breasts have grown a bit more – I’m a 42B and filling that in pretty solidly now.  I’m glad I did not get breast augmentation when I was in Chonburi – as they had recommended against it and said I would fill out a bit more.  I did and am very happy with what I have.  Mine are ‘on the sides’ a bit, so when I put on a bra I have to pull or tuck them in (and get ‘side’ control bra’s).  This makes them look a lot better as well.  One thing I learned the hard way however – a mosquito bite just under the bra band in the middle of my back is the very worst thing to have!!!  Can’t reach it plus the bra rubs it raw.  ACK !!!!

Finally, my hair is just below my shoulders and slightly wavy along the sides.  I love how it is styled and layered.  Just right.  Ya, I still have high spots on each side of my forehead and therefore have bangs that cover them.  I wish I could use other styles but I do like this one.  I’ve had my hair up and also in a ponytail – always wanted to do that.  I didn’t think I had that much of a ponytail until I caught a reflection in a cornered mirror – wow, it was nice and long – a ‘real’ ponytail at last!  Now if I could just get more hair to cover those high spots ….

I’m settling on a style!  I’m mostly wearing mid to long skirts with tank tops (here in Hawaii) along with cork wedge sandals (1.5 -> 2″) and almost always earrings and a necklace, sometimes a bracelet as well.  I don’t like pants but will wear jeans when I have to (like going to the summit or taking hikes).

Well, here you have it – my first post about transition after Lisa passed away.  Finally, I was able to write.  Hopefully shortly I will write about how Lisa has been showing up to me and others plus a post about grief/loss and coping.

With much aloha,

Sifan

Surgery in Thailand – Part 6, Trip Home

10/6/14 Business class lounge in Bangkok waiting for our flight home.

10/6/14 Business class lounge in Bangkok waiting for our flight home.

The day finally came (actually very early morning) when we had to leave to go back home.  It turns out this was a very very sad time.

To leave this wonderful clinic, their staff, the new sisters and the sisterhood that I’m now part of – was a difficult thing – I have tears as I write this just thinking back to that day.  We had everything packed the day before, except for what we needed to sleep and for my dilation.  The fresh clothes we were going to wear were put out neatly.  We got up at about 2am (ouch), I got up, emptied the catheter bag, did a long dilation, showered and emptied the bag again, then got dressed as Lisa got up and showered.  I then cleaned the rest of my dilation kit and packed it away.  Once we were ready we did a quick inspection of the room to make sure we didn’t miss anything (we did, we left a nice ice pack in the freezer part of the little room refrigerator).  Then we called for bell service to carry our luggage down to the lobby.

Once at the lobby, we didn’t wait long before the driver showed up with the clinic’s van.  It was so sad driving away from the hotel for the last time, driving down the main road of Chonburi, leaving …  He stopped at a place to buy water for us just on the outskirts of the town.  Right after that the road turned into a major highway and off we went.  It takes about an hour to get to the airport.  This was a very very long trip in my condition.  The seat cushion only helps a little.  I would put both arms down straight to lift myself up off the cushion every time I saw a bump coming.  I missed a lot of them ….  Once there, he got us to the check-in gate.  However, we were about 45 mins early and had to sit and wait before it opened.  Once they opened and because Lisa got us in business class, we were able to check in pretty fast.  They got us wheel chairs and whisked us through security.

Leaving Thailand - lots of water down there.

Leaving Thailand – lots of water down there.

Unfortunately, I packed a large bottle of benedine that the clinic gave us in my travel bag instead of check-in.  Security did not like that and confiscated it … grrrr.  After I got home, I posted this to the sister-hood and no one else had any problems like this.  I must have gotten the early morning security guard ….  In fact, I had posted this question before I left and was told there was no problem, especially with the note that Dr. Suporn gave us for the airports.  Oh well …

Then they pushed our wheelchairs to the business lounge – we were on JAL and oh my, what a beautiful lounge.  And there was a bar (that didn’t matter, I was not going to drink before a long trip) and a smorgasbord of breakfast food set out.  Lisa would get me settled (it was still painful) and then get something to eat.  Eventually I had to get up to use the restroom (meaning undo the catheter pinch then empty the bag), so after that I got some food myself.  It seemed like a long wait before the ‘wheelchair guys’ came back to get us and bring us to the plane.

A week ago, on our only outing in Chonburi, Lisa and I went to the huge mall they have there in an attempt to purchase some souvenirs for ourselves and friends back home.  This didn’t work out because the entire mall was stocked with ‘western’ goods that the people there wanted!  So we had planned to shop at the airport.  Unfortunately the JAL lounge was far from the shops – way to far for to Lisa to walk and forget it if you think I was going to walk anywhere at all.  So the only souvenirs we had were the couple of things we bought from the hotel (purse, jewelry boxes etc.) and a dress, shawls and earrings from the mall.

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Typhoon Vong Phong receding to the north as we land in Tokyo. Gad it won the race to Tokyo!

There was one tiny ittsie bittsie little problem …..  seems a certain mega-typhoon was in a race with us to get to Tokyo! Typhoon Vong Phong, dubbed the ‘most powerful storm on earth’.  From the headlines of the day “The most powerful storm on earth this year is heading for Japan” (http://mashable.com/2014/10/07/super-typhoon-vongfong-japan/).  It was a race, one I didn’t care to win.  So leaving Bangkok we were racing this pretty bad typhoon that had Tokyo as a target.  Turned out we lost, the typhoon won by about 4 hours. By the time we got there we had blue skies.  We landed with just a little turbulence. Out the window to the north we could see it receding in the distance.  Leaving Tokyo however, was delayed as all the planes that were grounded by this storm were now queuing to take off. We had about an hour delay.

The plane ride home was long and hard especially because I could only sit on my seat cushion and that is not very comfortable.  Fortunately Lisa had booked us on business class for the trip back.  The trip was about 25 hours long which included two 6 hour layovers.  On the longest seqment we were JAL’s ‘dreamliner’ airplane.  The business class seat had everything, including a ‘bed’ mode.  That was great because it was the only position that was comfortable at all for me.  The windows had electronic darkening – 6 levels of darkening so you could adjust to just what you wanted and still see out.   It had colored led ceiling lighting that changed depending on what was happening: boarding, meal time, sleep, etc.  What a plane!! Really glad Lisa splurged on the flight home …..

Honolulu at last - oh what a beautiful sight!

Honolulu at last – oh what a beautiful sight!

Around 21 hours after leaving Bangkok, we came in for a landing at Honolulu.  The first words spoken to us as we got off the plane here: “Aloha, e’ komo mai” (hello and welcome) …. mmmmmmm, yesssssss, home!  Oh how wonderful it was to have someone speak to us in English and understood right away what we said and not having to repeat or mimic – wheeeeee. Little things that say “you are home now”.

At last HOME !!!!! Wowowowowozie. Left Chonburi today at 4 am in the morning, arrived home at noon today (still Monday).  That’s a total of 25 hours driving, flying, waiting forever in airports on layovers, etc.  It’s weird – we left Narita at 8 pm Monday and arrived 11 am Monday …..9 hours BEFORE we left. Ah, the wonders of the international date line.  So, am I 9 hours younger now? Personally I think the stress of this long trip more than made up for that.

My bottom is sooooo sore ….. And it feels so good to be back on Maui. OMG just seeing the beaches and mountains as we flew in …. Of course it helps when all the other people on the plane are tourists and were also very excited. Now I just have to figure out what is night and what is day.  Before I went to bed I had to do the ‘infamous’ first dilation at home.  Infamous because due to the long flight and stress, this would be a difficult one – it lived up to the hype …

A very tired Lisa and Sifan on the DreamLiner - what an airplane!

A very tired Lisa and Sifan on the DreamLiner – what an airplane!

Well, my turn has come to say aloha to Chonburi, to Dr Suporn, to the marvelous staff and especially all the beautiful sisters I have had the pleasure to meet. What an experience this was. What a glorious sisterhood we belong to. I think Shakina coined the phrase ‘supornista’ – yesssss! And we are all Suporn butterflies – this one is starting to feel the wind beneath her wings.

There is a sadness here – both Lisa and I started feeling it as we drove out of Chonburi – we are missing everyone so much. I have tears in my eyes just writing this. Lisa and I want to wish everyone else still at Chunburi their own safe journeys. And to everyone we have met, aloha nui loa (very much aloha/love) – may all of our life journeys lead to joy and happiness!

With much aloha,

Sifan

La papillon Dame Sifan sent le vent sous leurs ailes

Surgery in Thailand – Part 4, Hotel

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From my hospital room they wheeled me down to the waiting van carrying all my supplies and luggage, Lisa holding my hand on the way.  Now remember, it was only the day before that I was allowed up out of bed.  Sitting on anything – using the special seat cushion – was a new experience and not exactly a good one.  Trying to find a comfortable position was difficult.  Then shifting from the wheelchair into the van was another experience in patience and ‘logistics’.  Normally the trip between the hospital and the hotel was about 20 mins or so.  However, this time there was a lot of traffic and it took perhaps twice as long.  It was difficult just sitting, but then bouncing along on those not so good roads in heavy traffic, stopping and starting, bumps etc. – well, let’s just say I stayed in bed most of the rest of that day letting my new bottom recover!

27384a183062f9d63e8825a94be11dcbWe got settled back into our hotel room, put everything away and ordered some food in.  Later one of the clinic staff came in to help me get organized for and do my first dilation (see part 3 about dilation).  Everything had a place and everything was handy for doing my dilations.   Even still, I would forget something and had to ask Lisa to bring it to me (once I’m in position, it is hard to get up until I’m finished).  There were a number of ‘special’ features in these rooms that made it quite nice for trans* people recovering.  I have a feeling, since almost the entire 3rd and 7th floors are for us, that Dr. Suporn had a hand in specifying these.  For example, there was a fresh water (tap water was not drinkable) spray hose for rinsing our selves off after using the toilet.  It was important that it was ‘clean’ water and of course not cold!  All these little features really made my stay there comfortable and convenient.

a7e2a1e6c70d49f7dfb6eed4a957d18cThat evening we went down to eat at the hotels restaurant.  We had a wonderful Thai meal with delicious appetizers, some with the famous Thai peanut sauce.

This is also where we had breakfast with all the other transwomen each morning.  This was one of the most important parts of being here in Thailand at Dr. Suporn’s clinic – to be able to meet and becomes friends with so many others like myself.  All different, yet so much in common.  They came from all over the globe.  We formed a sisterhood that has kept going long after we left Thailand.  There is lots of support and shared knowledge between us.  We can ask advice and others will respond with how they handled the same issues.  When one of us is in pain or depressed or having a hard time – we all respond.  This is so awesome – what a community – what a sisterhood!

cbf2e12c0e68190a8f60ea31f6c67aeaThis is the main lobby of the hotel where we would wait for the clinic van to take pick us up.  A lot of times the ‘sisters’ would meet down here too and just have fun.  In the far corner was an ice cream vendor, plus wine and cakes.  I made use of that a few times.  Nothing like ice cream to ease recovery a bit!

Off to the other side was a door that led out to a small garden nestled between parts of the hotel.  Lisa and would take walks out there during the times I wore the catheter and could not leave the hotel.  This gave me a little exercise without over doing it.

0df80b9f88abd6ae148e05701abd0861On our floor (7th floor – the top floor) we had a wonderful little waiting area that had current magazines (mostly in Thai however), but also books (in English) and videos that we could borrow.  The window looked out over the bay and the ocean.  Lisa and I watched a few storms pass by from this window.  For those sisters staying on this floor, this was a nice place to meet, chat and just relax.  Since just about everyone on this floor was a patient – this sort of was our private little area.  The third floor also was for Dr. Suporn’s patients.  They had a similar area there too, but there was a patio outside they could go on.  Many of us would get something to eat or drink and bring it out there – pending on the heat and humidity and occasional thunderstorms.

We seldom have thunderstorms in Hawaii (almost never) so those were exciting.  Lisa and I would leave the curtains open at night during a storm just to watch and enjoy the storm.  Most days it was partly cloudy to overcast and hot and humid.  This was after the monsoon season so we only got an occasional storm.

20140918_193113This is the view out our window.  We were facing east and had the morning sun.  For me that felt great as Lisa liked to have our room cold – the sun streaming in warmed up that area of the room and I made use of that.  I would sit in the chair under the window, legs up on the bed, seat cushion under my and plenty of pillows around me.  I had either my computer or my tablet and would spend the time reading e-books or on-line.  Almost all of the sisters were on FB and we kept in touch that way, including making plans for diner or if someone could not get up – we would get them what they needed.

In this view you can see a giant Buddha over on the hill side and just below to the right is a huge Chinese temple complex, you can see the one large building with the orange double roof.  One day we say a powered hang glider flying around by the Bhudda!

The farthest away we got was to a 7/11 about 3 blocks down from us.  It was interesting trying to find what we needed as everything was in Thai.  Finally Lisa had to point to her bottom to ask where the liners and pads where!  Because of my complications I was not able to do much more than this.  Lisa however, was able to cross the main street and explore the mall on the other side.  There was a great pizza place over there and an ice cream place too.  I wish I could have gone!

One thing Lisa and I did do towards the end of our stay was to use the hotel’s car and driver and to the Central Plaza  – which is a HUGE mall they have there.  We arranged for them to pick us back up 1 hour later.  This place was really huge.  We wanted to buy some Thai souvenirs – but this mall was for them, not tourists – as a result everything in there was ‘western’ stuff – no traditional Thai nick knacks!  I was really sore after that trip.

The next post will cover the complications I suffered and at the time I’m writing this – I’m still not recovered from them.

With Aloha,

Sifan